Quality of Life of Parents/Adults Intellectual Disability

Quality of life of parents of children/adults with an intellectual disability


Intellectual disability is not a single, isolated disorder. The American Association of Intellectual and Developmental Disability (AAIDD) provide a tri-dimensional definition of intellectual disability which is currently the most widely accepted. Intellectual disability, which originates before the age of 18, is a disability characterized by significant limitations both in intellectual functioning (reasoning, learning, problem solving) and in adaptive behavior (AAIDD, 2007). As defined by the American Academy of Child & Adolescent Psychiatry (AACAP), adaptive behavior covers a range of everyday social and practical skills in communication, self-care, home living, social skills, community use, self-direction, health and safety, functional academics, leisure, and work. This categorization sub-classifies intellectual disability according to the intensity and nature of needed supports. In addition, it emphasizes the need for detailed assessment in all relevant domains, including psychological and emotional functioning (AACAP, 1999). In recent years, American Association on Mental Retardation (AAIDD, 2007) have adopted the new terminology and replaced the term “mental retardation” with intellectual disability. “Mental retardation” is still used, however, in the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR) (American Psychiatric Association, 2000).
The concept of Quality of Life has been developed over many decades and applied to a wide range of target groups and whole populations. “Quality of life is a matter of subjective experience. The concept has no meaning apart from what a person feels and experiences”.
Quality of life (QOL) is defined by the World Health Organization (WHO) as an individual's perception of his/her position in life in the context of the culture and value systems in which he/she lives, and in...